Asembia AXS25 Summit Focuses on High Costs of Rare Disease Treatments and Specialty Pharmacy Viability

Experts at Asembia’s AXS25 Summit convened to discuss the financial complexities surrounding specialty pharmacies and rare diseases, particularly focusing on the challenges of high treatment costs and the need to foster innovation in a sustainable manner. The discussions centered on how to navigate the economic landscape where cutting-edge therapies for rare conditions often come with significant price tags. The summit participants examined strategies for managing the financial strain of these treatments while simultaneously encouraging further research and development. The experts explored various approaches to ensure patients have access to necessary medications without stifling the progress of pharmaceutical innovation in the rare disease space. The economic viability of specialty pharmacies in the context of rare diseases was a central theme, prompting conversations about balancing financial realities and the pursuit of medical advancements.

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Date: April 29, 2025

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Author

Mark Chiang

紐約 NYU Computer Science 碩士 紐澤西 UMDNJ Biomedical Informatics 博士 中研院博士後 台灣大學博士後