Parents of Medically Complex Children Take on Hospital-Level Care at Home Amid Medicaid Gaps

Parents of children with medically complex conditions are increasingly taking on hospital-level care at home due to gaps in Medicaid coverage, according to recent accounts from families navigating the system. Many report that Medicaid often denies coverage for essential medical equipment or fails to provide access to trained nursing assistance, leaving parents to fill critical caregiving roles themselves. Some caregivers describe sacrificing sleep and personal well-being as they shoulder responsibilities typically handled by healthcare professionals.

Families cite challenges such as lengthy approval processes for durable medical equipment (DME), limited supplier options, and inconsistent access to skilled nursing services. These obstacles reportedly force parents into a position where they must learn advanced medical procedures and manage their children’s care without adequate support. Parents have shared experiences of being denied necessary items like ventilators or feeding pumps, leading them to purchase equipment out-of-pocket or improvise solutions. The strain is compounded by staffing shortages in home health agencies, which further limits the availability of trained nurses for in-home care.

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Source: GO-AI-ne1

Date: June 9, 2025

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Author

Mark Chiang